Professor Magi Sque

Professor of Clinical Practice and Innovation joint appointment with Royal Wolverhampton NHS Trust

Email address: M.Sque@wlv.ac.uk Phone number: 01902 321614 Location: City Campus Faculty: Faculty of Education Health and Wellbeing School/Institute: Health Professions Areas of expertise: Psychological and social issues that concern bereavement, organ and tissue donation and post mortem organ use

About

I qualified as a Registered Nurse at Guy’s Hospital, London. I specialised in oncological nursing, working in that field for 17 years at the Royal Marsden Hospitals, London and Sutton, and the Princess Margaret Hospital, Toronto, Canada.

I completed a PhD in 1996 on organ donation and transplantation, as a full-time student supported by a Department of Health Nursing Research Studentship, in the Department of Psychology, at the University of Southampton. This groundbreaking work was the seed corn for a programme of research that gained world recognition and contributed to national and international policy on the care of bereaved families with whom organ donation is discussed.

I was International Chair of the European Platform for Organ Donation and Transplantation (ELPAT) Deceased Donation Working Group 2008-13. I have given oral evidence to the House of Lords Select Committees on: ‘Inquiry into the issues raised by the EU Commission’s communication relating to organ donation and transplantation’, 7 February 2008, and: 'Increasing consent rates for organ donation'22 May 2012.

Since 2010 I have held a joint appointment with the University of Wolverhampton’s Faculty of Education Health and Wellbeing and The Royal Wolverhampton NHS Trust as Professor in Clinical Practice and Innovation. My remit is to provide research leadership and support and be a role model for healthcare practitioners in the caring sciences, fostering a culture of enquiry and practice innovation, in which people thrive.

Research interests

  • Psychological and social issues that concern bereavement, organ and tissue donation and post mortem organ use
  • Care of the bereaved family where organ donation was discussed
  • Methodological expertise in: Conducting sensitive research and grounded theory
  • Qualitative research

Membership of professional bodies

  • Royal College of Nursing, 2016
  • Nursing and Midwifery Council, 2016
  • ESOT, 2016
  • Member, Deceased Donation Working Group, ELPAT, 2008

Qualifications

  • Fellow of Higher Education Authority (FEHA), 2007
  • PhD, University of Southampton, 1996
  • Induction to Counselling, Southampton Pastoral Service, 1993
  • Diploma in Nursing Education, University of London, 1991
  • Registered Nurse Teacher, United Kingdom Central Council, 1991
  • BSc (Hons) Nursing Studies, University of Surrey, 1985
  • Certificate of Oncological Nursing, Royal Marsden Hospital, 1984
  • Registered Nurse, College of Nurses of Ontario, Canada, 1972
  • State Registered Nurse, General Nursing Council, 1969
  • Obstetric Nursing, Guy's Hospital, 1968

Publications

Selected Publications

Research Gate: Citations 583; Reads 1,269; RG Score 24.24[25/07/16]

Journal papers

Galasinski D.and Sque M. Organ donation agency: A discourse analysis of correspondence between donor and organ recipient families (2016) Sociology of Health & Illness(in press)

Walker W. and Sque M. (2016) Balancing hope and despair at the end of life: The contribution of organ and tissue donation. Journal of Critical Care, 32, 73-78. http://dx.doi.org/10.1016/j.jcrc.2015.11.026Epub 2015 Dec 9.

Jansen N.E. McDonald M. Haase-Kromwijk BJJM. Sque M. and Long-Sutehall T. (2014) When are bereaved family members approached for consent to organ donation? Commentary from 10 European member states. Organs, Tissues and Cells, 17, 101-113

Sque M. Walker W. and Long-SutehallT. (2014)Research with bereaved families: A framework for ethical decision-making. Nursing Ethics: An International Journal for Health Care Professionals, 21: 8, 946–955. 0969733014521097, first published on March 10, 2014 as doi:10.1177/0969733014521097

Sque M. and Galasinski G. (2013) ‘Keeping her whole’: Bereaved families’ accounts of declining a request for organ donation. Cambridge Quarterly of Healthcare Ethics, 22: 1, 55-63

Walker W. Broderick A. and Sque M. (2013) Factors influencing bereaved families’ decisions about organ donation: An integrative review of the literature. Western Journal of Nursing Research, Online First. Doi.10.1177/0193913484987. 35: 10, 1339-1359

Sque M. (2012) “Life on the kidney transplant list.” British Kidney Patient Association Review, 6-7

Long-Sutehall T. Winstanley E. Clarkson A. and Sque M. (2012) Evaluation of the experiences of family members whose deceased relative donated tissues at the NHSBT dedicated donation facility in Speke, Liverpool. Cells and Tissue Banking, 13: 4, 537-546

Dougherty L. Sque M. and Crouch R. (2012) Decision making processes used by nurses during intravenous drug preparation and administration. Journal of Advanced Nursing, 68: 6, 1302-1311

Long-Sutehall T. Sque M. and Addington-Hall J. (2011) Secondary analysis of qualitative data: a valuable method for exploring sensitive issues with an elusive population? Journal of Research in Nursing, OnlineFirst, published on 3 September, 2010 doi:10.1177/1744987110381553, 1-10./ 16: 4, 335–344

Harding T. and Sque M. (2010) Do leadership skills impact clinical decisions made by ward managers?  Nurse Leader, 8: 1, 42-45

Long T. Sque M. and Addington-Hall J. (2008) What does a diagnosis of brain death mean to family members approached about organ donation? A review of the literature. Progress in Transplantation, 18: 2, 118-125, Quiz 126

Long T. and Sque M. and Addington-Hall JH. (2008) Conflict Rationalization: How family members cope with a diagnosis of brain stem death. Social Science & Medicine, 67, 253-261

Sque M. Long T. Payne S. Roche W. and Speck P. (2008) The UK postmortem organ retention crisis: a qualitative study of its impact on parents. Journal of the Royal Society of Medicine, 101, 71-77

Sque M. Long T. Payne S. and Allardyce D. (2008) Why relatives do not donate organs for transplants: ‘sacrifice’ or ‘gift of life’? Journal of Advanced Nursing, 61: 2, 134-144.

(Paper of the month for Journal of Advanced Nursing January, 2008, editorial by Professor Alison Tierney 61: 2, and had a press release)

Dickinson G. Clark D. and Sque M. (2008) End of life and palliative care issues in UK pre-registration and undergraduate nursing programmes. Nurse Education Today, 28, 163-170

Long T. and Sque M. (2007) An update on initiatives to increase organ donation: A UK perspective. British Journal of Transplantation, 2: 2, 10-15

Long T. Sque M. and Payne S. (2006) Information sharing: its impact on donor and non-donor families’ experiences in hospital. Progress in Transplantation, 16: 2, 144-149

Sque M. Payne S. and Macleod Clark J. (2006) Gift of life or sacrifice?: Key discourses to understanding organ donor families’ decision-making. Mortality, 11: 2, 117-132. (This was the 5th most down-loaded article from Mortality for 2006)

Sque M. Long T. and Payne S. (2005) Organ donation: Key factors influencing families’ decision-making. Transplantation Proceedings, 37: 2, 543-546

Colbourne L.  Colbourne L. and Sque M. (2005) The culture of cancer and the therapeutic impact of qualitative interviews. Journal of Research in Nursing 10: 5, 551-567

Colbourne L. Colbourne L. and Sque M. (2004) Split personalities: The nurse researcher and role conflict. NT Research, 9: 4, 297-304

DeVries K. S DeVries K. Sque M. Bryan K. Abu-Saad H. (2003)  Variant Creutzfeldt-Jakob disease: Need for mental health and palliative care team collaboration. International Journal of Palliative Nursing, 9: 12, 512-520

Davies M. Da  Davies M. and Sque M. (2002) Living on the outside looking in: a theory of living with advanced breast cancer. International Journal of Palliative Nursing, 8: 12, 583-590

Wells J. and  Wells J. Sque M. (2002) ‘Living choice’: The commitment to tissue donation in palliative care.  International Journal of Palliative Nursing, 8: 1, 22-27

Sque M. Rese Sque M. (2000) Researching the bereaved: an investigator’s experience. Nursing Ethics, 7: 1, 23-34

Sque M. Payne S. and Vlachonikolis I. (2000) Cadaveric donotransplantation: nurses’ attitudes, knowledge and behaviour.  Social Science & Medicine, 50: 5, 541-552

Sque M. and Payne S. (1996) Dissonant Loss: the experiences of donor relatives. Social Science & Medicine, 43: 9, 1359-1370

Sque M. and Payne S. (1994) Gift Exchange Theory: a critique in relation to organ transplantation. Journal of Advanced Nursing, 19: 45-51

Other research and scholarship outputs:

Books - Edited

Sque M. and Payne. S. (eds) Organ and tissue donation: an evidence base for practice.  Maidenhead: Open University, 2007. (Excellent review by Smith J. Australian Journal of Medical Science 29: 1, 2008, 20.)

Edited works

Sque M. and Payne S. (2016) Report 3. Critical care experiences and bereavement among families of organ donors: A reflective account of a grounded theory study. In Lyon E. and Coyle A. (Eds), 2nd edition, Analysing qualitative data in psychology. London: Sage Publications, 322-339.

Jansen NE. Haase-Kromwijk BJJM. McDonald M. and Sque M. (2013) Elements of the European jigsaw: the timing of the approach to bereaved families for consent to DBD or DCD donation and the implications for effective donation campaigns. In Randhawa G. and Schicktanz S. (Eds.) Public engagement in organ donation and transplantation. Lengerich, Germany: PABST Science Publishers, 161-169.

Sque M. (2011) Post-mortem examination and organ donation. In Glasper EA. McEwing G. and Richardson J. (Eds) Emergencies in children’s and young people’s nursing, Oxford: Oxford University Press, 88-89.

Sque M. Frankland J. Long-Sutehall T. Addington-Hall J. and Mason J. (2011) Seeking normality: Life on the kidney transplant list. In Weimar W. Bos MA. and van Busschbach JJ. (Eds) Organ transplantation: ethical, legal and psychological aspects: Expanding the European platform. Lengerich, Germany: PABST Science Publishers. 281-288. 

Long-Sutehall T. and Sque M. (2011) Brain based criteria for diagnosing death: What does it mean to family members approached about organ donation? In Weimar W. Bos MA. and van Busschbach JJ. (Eds) Organ transplantation: ethical, legal and psychological aspects: Expanding the European platform. Lengerich, Germany: PABST Science Publishers. 252-256. 

Siebelink  MJ. Bellali TC. and Sque M. (2011) Children as donors: Issues for parents and professionals. In Weimar W. Bos MA. and van Busschbach JJ. (Eds) Organ transplantation: ethical, legal and psychological aspects: Expanding the European platform. Lengerich, Germany: PABST Science Publishers. 274-280. 

Sque M. and Long T. (2011) Bereavement, decision-making and the family in organ donation. In Farrell AM. Price D. and Quigley M. (Eds) Organ shortage: Principles, pragmatism and practice. Cambridge: Cambridge University Press, 67-85.

Sque M. Chipulu M. and McGonigle D. (2009) Clinical decision making. In Hall M. Noble A. Smith S. (Eds) A foundation for neonatal care: a multi-disciplinary guide, Oxford: Radcliffe Publishing. 235-252.

Sque M. Long T. and Payne S. (2008) Why bereaved relatives declined organ and tissue donation. In Weimar W. Bos MA. and van Busschbach JJ. (Eds) Organ transplantation: ethical, legal and psychological aspects: towards a common European policy. Lengerich, Germany : PABST Science Publishers. 471-481. (Edited book to launch European Platform on Organ Donation and Transplantation).

Sque M. and Payne S. (2007) Report 3. Critical care experiences and bereavement among families of organ donors: A reflective account of a grounded theory analysis. In Lyon E. and Coyle A. (Eds) Analysing qualitative data in psychology: a practical and comparative guide. London: Sage Publications, 217-234.

Sque M. (2007) A dissonant loss: The bereavement of donor families. In Sque M. and Payne S. Organ and tissue donation: an evidence base for practice. Maidenhead: Open University, 59-81.    

Sque M. and Payne S. (2007) Closing thoughts and the future. In Sque M. and Payne S. Organ and tissue donation: an evidence base for practice. Maidenhead: Open University, 169-180.    

Sque M. and Payne S. and Macleod Clark J. (2007) Gift of life or sacrifice: Key discourses for understanding decision-making by families of organ donors? In Sque M. and Payne S. (Eds) Organ and tissue donation: an evidence base for practice.  Maidenhead: Open University, 40-58.

Editorships – Journal:

Guest editors: Sque M. and Payne S. (2006) Current issues in organ donation and transplantation. Special issue of Mortality, 11: 2, May.

Official Reports: Whole Report:

Sque M. Walker W. Long-Sutehall. T. Morgan M. Randhawa G. and Warrens A. (2013) Bereaved families’ experiences of organ and tissue donation, and perceived influences on their decision making. Final report of a study funded by the Department of Health, University of Wolverhampton, June. 

Sque M. Frankland J. Long T. Addington-Hall J. and Mason J. (2009) ‘Life on the list’: an exploratory study of the life world of individuals waiting for a kidney transplant. Final report of a study funded by British Renal Society, University of Southampton, October.

Sque M. Long T. and Payne S. and Allardyce D. (2006) Exploring the end of life decision-making and hospital experiences of families who did not donate organs or tissues for transplant operations. Final report of a study funded by UK Transplant, University of Southampton, February.

Smith P. Sque M. and Davies M. (2005) Specialist palliative care support for family caregivers of non-cancer patients: An exploratory study in Hampshire, Dorset and Wiltshire. Final Report of a study funded by HOPE Innovation Fund, University of Southampton, June.

Sque M. Long T. and Payne S. (2004) From understanding to implementation: Meeting the needs of families and individuals affected by post-mortem organ retention. Final report of a study funded by the Department of Health, with the Retained Organs Commission, University of Southampton, April.

Sque M. Long T. and Payne S. (2004) Families who did not donate organs: Recruiting potential [research] participants. Final report of a study sponsored by the British Organ Donor Society, funded by the Community Fund, University of Southampton, March.

Sque M. Long T. and Payne S. (2003) Organ and tissue donation: Exploring the needs of families. Final report of a three-year study sponsored by the British Organ Donor Society, funded by the Community Fund, University of Southampton, February.

Sque M. (2000) ‘A story to tell’: post bereavement correspondence between organ donor families, recipients, their OPOs and the National Donor Family Council – An American investigation. A report of a study funded by The General Nursing Council for England & Wales Trust, University of Surrey, December.

Official Reports: Part of Report:

Morgan M. Kenten C. Deedat S. Farsides B. Newton T. Randhawa G. Sims J. and Sque M. (2016) Increasing the acceptability and rates of organ donation among minority ethnic groups: a programme of observational and evaluative research on Donation, Transplantation and Ethnicity (DonaTE) NIHR Programme Grants for Applied Research 4:4 http://dx.doi.org/10.3310/pgfar04040

Walker W. Sque M.  Carpenter B. and Roberts S. (2014) Recognising the gift of organ and tissue donation: The views and preferences of donor families University of Wolverhampton, Final report funded by The Royal Wolverhampton NHS Trust Organ Donation Committee, February.

ESRC Seminar Series: (2008) Transplantation and the organ deficit in the UK: Pragmatic solutions to ethical controversy, Final Report. Findings and recommendations of core participants, University of Manchester, June.

Simmonds R. Sque M. Goddard J. Tullet R. and Mount J. (2001) Improving access to palliative care services for ethnic minority groups. A report of a study carried out by St. Catherine’s Palliative Care Centre funded by the Community Fund.

Recent invited plenary presentations:

Forthcoming

06/07/2016 - Invited plenary presentation The great organ deficit a 21st century problem: What  you can do to help. RCN West Midlands Centenary Conference, University of Wolverhampton Science Park, Wolverhampton

03-05/10/2014 - Invited plenary presentation Current challenges in approaching relatives of potential organ donors following brain death. 25th European Organ Donation Congress, Budapest, Hungary

26-31/07/2014 - Invited plenary presentation Donor families: Impact of the donation request and donation. World Transplant Congress, San Francisco, USA

04/12/2013 - Invited plenary presentation Bereaved families’ experiences of organ and tissue donation, and perceived influences on their decision making. Midlands Regional Organ Donation Collaborative, The Studio, Birmingham.[Skyped to Mohan Foundation in India]

17/06/2013 - Invited plenary presentation A dissonant loss: conflict and resolution in bereaved families’ decision-making about organ and tissue donation’ Organs Workshop, Law and Philosophy Department, Pathfoot Hall, Stirling University, Scotland

23/05/2013 - Invited plenary presentation Discussions around organ and tissue donation, 2013 Palliative Care session, Primary Care and Public Health, NEC, Birmingham

28/03/2013 - Invited presentation Bereaved families who decline donation: Using Evidence to maximise organ availability. Presentation to Regional Organ Donation Collaborative, Belfast

25/04/2012 - Professorial inaugural lecture, From seed corn to Naseberry tree: Growing a programme of research in organ and tissue donation and transplantation, University of Wolverhampton, City Campus

06/03/2012 - Invited plenary presentation, WMC HIEC- Chronic Kidney Disease Seminar, Seeking Normality: Life on the kidney transplant waiting list, The Studio, Birmingham

06/12/2010 - Invited plenary presentation, A Dissonant Loss: the bereavement of organ donor families, The cost of living – the cost of giving organ donation within the NHS, Brighton and Sussex Medical School, University of Sussex

28/10/2010 - Invited plenary presentation, How do bereaved families conceptualise their dead? and expert participant in DH Workshop to draft Guidance for staff responsible for care after death (last offices) final document published 06 April, 2011

2-3/09 /2010 - Invited plenary presentation, The impact of organ donation decisions on bereaved relatives, 2nd National Conference on Bereavement in a Healthcare Setting, Dundee, Scotland

30/06/2010 - Invited plenary presentation, Understanding the care needs of bereaved organ donor families End of Life Care Conference, Brighton

12/06/2009 - Invited plenary presentation, A Dissonant Loss: the bereavement of organ donor families End of Life Matters: a conference for professionals supporting people through dying, death and bereavement, Newark Street, East London SHA

05/03/2009 - Invited plenary presentation, Addressing family support Pathway of Care of the Deceased Patient, East Hampstead Park Conference Centre, Wokingham

Why relatives do not donate organs for transplant operations: Is ‘sacrifice’ a more appropriate family care model than the ‘gift of life’? Invited panel member and guest presentation, International Society of Critical Health Psychology (ISCHP) Symposium on Organ Donation and transplantation, Boston, USA

17/10/2007 - Invited guest presentation, Dissonant Loss: the bereavement of organ donor families. Bereavement Research Forum Symposium, Help the Hospices, London

Recent Conference Presentations:

21-25/04/2016 - 4th ELPAT Congress, Organ Transplantation: Ethical, Legal and Psychosocial Aspects: Global Challenges - Angelicun Congress Centre, Rome, Italy

Sque M Life Lines: A Father's personal account of organ donation. Oral presentation

Sque M and Walker W 'A little dollop of good in a very dark time': What organ donation meant to donor families. Poster presentation

Galasinski D and Sque M Organ donation agency: A discourse analysis of correspondence between donor and organ recipient families. Oral presentation

Walker W and Sque M Recognising the gift of organ and tissue donation: an evidence-based approach. Poster presentation

15/12/2014 - Deconstructing donation conference - Institute of Medical Ethics, Lancaster University, Lancaster

Sque M Walker W Broderick A The influence of temporality on organ donation decision making. Oral presentation

11-12/07/2014 - Division of Counselling Psychology Annual Conference - Inspiration, Innovation and Impat, Victoria, London

Cullen, C. Nicholls, W. and Sque, M. Maintained weight loss; facilitators and barriers. Poster Presentation

05-08/09/2013 - Death, Dying and Disposal 11 Internatl Conference - Theory meets practice, The Open University, Milton Keynes

Sque, M. Galasinski, D. Organ donation agency: A discourse analysis of correspondence between donor and organ recipient families. Oral presentation.

Sque, M. Walker, W. Long-Suitehall, T. Organ and tissue donation: bereaved families' experiences of participating in research. Oral Presentation

22/04/2013 - 3rd ELPAT Congress: Global Issues, Local Solutions World Trade Centre, Rotterdam, The Netherlands

Sque, M. and Galasinski, D. 'Keeping her Whole': Bereaved Families' Accounts of Declinig a Request for Organi Donation. Oral Presentation

Walker, W. Broderick, A. and Sque, M. Factors incluencing bereaved families' decisions about organ donation: An integrative review of the literature. Oral Presentation

08/02/2013 - Wind T. Broderick A. Jansen N. McDonald M. Long-Sutehall T. and Sque M.  Family guidance in the donation after circulatory death process, the 6th International Conference on Organ Donation after Circulatory Death Process. Paris. Oral presentation

09-11/05/2012 - Long-Sutehall T. Clarkson A. Winstanley E. and Sque M. Evaluation of theexperiences of family members whose decreased relative donated tissues at the NHSBT dedicated donation facility in Speke, Liverpool. British Association for Tissue Banking. XXth Annual Scientific Meeting. Worcester College, Oxford. Oral presentation

19/11/2012 - Kenten C. Sque M. and Morgan M.  Meanings of ‘family’ in the context of death and organ donation on intensive care units,  British Sociological Association, London. Oral presentation

17-20/04/2010 - 2nd ELPAT Congress: Expanding the European Platform World Trade Center, Rotterdam, The Netherlands

Sque M. Bellali T. Siebelink M. and Hasse-Kromwijk B. Walkin-in session 1. Children as donors [18/04/2010 via Skype video link]

Sque M. Hasse-Kromwijk B. Youngner S. Desatnik P. McDonald M. and Radcliffe-Richards J. Workshop 4. Deceased donation (19/04/2010 via Skype video link)

Sque M.  Impact of donation on bereaved families. Oral presentation

Sque M. Frankland J. Long-Sutehall T. Addington-Hall J. and Mason J. Seeking normality: Life on the kidney transplant list. Poster presentation

Long-Sutehall T. Sque M. and Addington-Hall J. Brain-based criteria for diagnosing death: what does it mean for family members approached about organ donation? Oral presentation

10/09/2009 - 9th International Conference on the Social Context of Death, Dying and Disposal, University of Durham, Durham

Sque M. Long T. Macleod Clark J. and Payne S. Gift of life or sacrifice: Is organ donation a blessing or burden for bereaved families? Oral presentation

Long-Sutehall T. Sque M. and Addington-Hall J. Brain-based criteria for diagnosing death: what does it mean for family members approached about organ donation? Oral presentation

10-14/08/2008 - xxii Congress of the Transplantation Society, Conference Centre, Sydney, Australia

Sque M. Long T and Payne S. Organ donation as ‘gift of life’: who are we kidding? Poster presentation, 2173

Sque M. Long T. and Addington-Hall J. What does a diagnosis of brain stem death mean to family members who are approached about organ donation? Poster presentation, 1432.

04/12/2007 - Unhealthy Professional Boundaries? Working together in Health and Social Care, Goodenough College, London

Sque M. Long T. and Payne S. Why bereaved relatives refuse organ and tissue donation. Oral presentation

27/09-01/10/2007 - 15th European Transplant Coordinators’ Congress, Prague

Sque M. How do bereaved families conceptualize post mortem organ donor body and organ transfer to recipients? Oral presentation

27/09-01/10/2007 - 15th European Transplant Coordinators’ Congress, Prague

Sque M. How do bereaved families conceptualize post mortem organ donor body and organ transfer to recipients? Oral presentation.

12-15/09/2007  8th International Conference on the Social Context of Death, Dying and Disposal, University of Bath, Bath.

Sque M. Long T. and Payne S. Why relatives do not donate organs for transplant operations: Is ‘sacrifice’ a more appropriate family care model than the ‘gift of life’? Oral presentation.

Long T. Sque M. and Addington-Hall J.  What does a diagnosis of brain stem death mean to family members who are approached about organ donation?  Oral presentation

Dickenson G. Clark D. and Sque M. Palliative care and end of life issues in UK pre-registration, undergraduate nursing programmes.  Oral presentation

01-04/04/2007 - Initiating  a  European Platform, Organ Transplantation: Ethical, Legal and Psychological Aspects, Towards a Common European Policy, World Trade Center, Rotterdam.

Sque M. Long T. and Payne S. Why Relatives refuse Donation  Oral presentation.

Sque M. Long T. Payne S. and Macleod Clark J. Organ donation: Blessing or burden, gift of life or sacrifice? Oral presentation.

 

 

Previous professional experience

2001-2010 - Faculty of Health Sciences, University of Southampton, Senior Lecturer

1997-2001 - European Institute of Health & Medical Sciences (EIHMS), University of Surrey, Guildford

  • Director of Studies MSc Advanced Clinical Practice
  • Programme   Director MSc Advanced Clinical Practice Cancer and  
  • Palliative
  • Care Nursing Pathways
  • Lecturer Oncology/Palliative Care
  • Academic Lead, Palliative Care Clinical Academic Unit
  • University Moderator to BA in Health Studies, King Edward VII Hospital, Midhurst

1993-1996 - Department of Psychology, University of Southampton, Southampton, Fulltime PhD Student, Funded by a Nursing Research Studentship, Department of Health

1992-1993 - Institute for Health Services, Bournemouth University, Bournemouth, Nurse Tutor

1990-1992 - Dorset & Salisbury College of Midwifery & Nursing, Poole Hospital, Poole, Nurse Teacher

1990 - Christchurch Hospital, Christchurch, Staff Nurse, Orthopaedic (night duty)

1988-1989 - St Leonard’s Hospital, Ringwood, Senior Night Sister (temporary post)

1985-1986 - Royal Marsden Hospital, Sutton, Senior Nurse, All Outpatient Departments (Clinics, Radiotherapy, Chemotherapy and Diagnostic Suites)

1984-1985 - North East Surrey College of Technology, Ewell & University of Surrey, Guildford, Full-time research year BSc (Hons) Nursing Studies, Funded by Department of Health and Social Security

1981-1984 - The Royal Marsden Hospital, Sutton, Staff Nurse-Sister, Nuclear Medicine

1978-1981 - The Princess Margaret Hospital, Toronto, Canada, Head Nurse, Outpatient and Chemotherapy Clinic Suite A

1971-1974 - The Princess Margaret Hospital, Toronto, Canada, Head Nurse/Research Assistant, Leukapheresis Unit

1969-1970 - The Royal Marsden Hospital, London, Staff Nurse, Operating Theatres

1969 - Guy’s Hospital, London, Staff Nurse, Surgical ENT and Radiotherapy ward

Further information

Details of current supervision:

PhD: 4 Completions

  • Supervisor - Internal - Silent slips, trips and broken hips:  The recovery experiences of young adults following an isolated fracture of the proximal femur; completion due June 2016

Professional Doctorate (Health and Wellbeing):

3 Current Students

  • Director of Studies - Internal - Leading the Healthy Child Programme 5-19: School Nurses’ Perspectives - Completion December 2016
  • Director of Studies - Internal - Nurse academics’ identities and contributions to the clinical practice environment: An Appreciative Inquiry - Completion September 2017
  • Director of Studies - Internal - Dying from acute stroke: orchestrating an autoethnographic sonata of care - Completion January 2018

Doctor in Counselling Psychology:  2 Completions

  • Supervisor - Internal - Recipients’ experiences of transplant tourism - Completion September 2019

Doctor of Clinical Practice: 2 Completions

MSc: 25 completions

Membership of professional, quality, reviewing and editorial bodies:

Chair of the Peer Review Group at Royal Wolverhampton NHS Trust

  • Review journal papers for: American Journal of Critical Care, BMC Anesthesiology, BMC Health Services Research,BMC Medical Ethics, BMJOPEN, Critical Care, iMedPub, Journal of Advanced Nursing, Journal of Medical Ethics, Medical Anthropology Quarterly, Mortality, Nursing Ethics, Nursing Standard,Psychology and Health,Saudi Medical Journal, Sociology of Health & Illness, Social Science & Medicine, Transplant International, Transplantation
  • Reviewed grant proposals for: PSI Foundation, Canada 2014, 2015; Swiss National Science Foundation 2013; ESRC 2012, 2014, 2016; The Wellcome Trust’s Biomedical Ethics programme, April 2007, September 2009, December 2012, January 2014; NHS Institute for Health Research 2008; (research studentship) Joint Research Committee, Chelsea and Westminster Healthcare NHS Trust, February 2006
  • was a Consultant Editor toNursing Ethics 2001-2007
  • am an External Reviewer for Kidney Research UK

Member of the scientific and organising Committees

  • IV International Symposium on Coma and Death. Havana, Cuba, 9-12 March, 2004
  • ELPAT Invitational Meetings Juan les Pins, France, 14-16 November 2008 and 13-15 November 2009; 8-10 October Sofia, Bulgaria 2010; 4-6 November Berlin, Germany 2011; 2-4 November, Sicily 2012; Juans les Pins, France 22-24 November 2013
  • 2nd ELPAT Congress, Expanding the European Platform Congress, 17-20 April 2010, World Trade Center, Rotterdam, Netherlands;
  • 3rdELPAT Congress, Organ Transplantation: Ethical, Legal and Psychosocial Aspects: Global Issues, Local Solutions,20-23 April 2013, World Trade Center, Rotterdam; Netherlands.
  • 4th ELPAT Congress, Organ Transplantation: Ethical, Legal and Psychosocial Aspects: Global Challenges, 22-25 April 2016, Angelicun Congress Centre, Rome; Italy.
  • Session Chair at 4th ELPAT Congress, Organ Transplantation: Ethical, Legal and Psychosocial Aspects: Global Challenges, 22-25 April 2016, Angelicun Congress Centre, Rome; Italy; 3rdELPAT Congress, Ethical, Legal and Psychosocial Aspects of Organ Transplantation; Global Issues, Local Solutions, 20-23 April 2013, World Trade Center, Rotterdam, Netherlands, and 7th and 8th and 9th Social Context of Death, Dying and Disposal Conferences, 2005 and 2007 at Bath University, and 2009 at University of Durham.
  • 2008-2013International Chair ELPAT Deceased Donation Working Group

Other relevant professional and voluntary activities:

  • Supervisor for West Midlands Clinical Academic Internship Programme
  • Member of Deceased Donation Working Group, ELPAT
  • Member of the Royal College of Nursing’s: Transplant Nurses Forum, Critical Care Nursing Forum Palliative Nursing Forum
  • Trusteeof the South Staffordshire Medical Foundation
  • Secretary to Promoting Organ Donation (UK)

Public appointments, community roles and responsibilities

I work closely with national charities and peer support groups for families involved in organ donation and transplantation, and support many of their events and undertakings. I initiated the National Thanksgiving and Transplant Service for families of organ donors, transplant recipients, their families and health professionals involved in transplant activity. The first service was held in Guildford Cathedral, 3 June 2000 as the ‘Millennium Commemorative and Thanksgiving Transplant Service’ with the British Organ Donor Society (BODY), the Chaplaincy of the University of Surrey and invited contributors. My contribution to starting this initiative was acknowledged at the service held in Ripon Cathedral, 2001 and Bristol Cathedral 2002.

I am secretary to a local Wolverhampton Community Group POD (Promoting Organ Donation UK) which meets quarterly to incentivise promotion of organ donation. I am a member of the Organ Donation Group at the Royal Wolverhampton NHS Trust. POD also works with the University of Wolverhampton to raise awareness about organ donation within the University of Wolverhampton community.

Funded Research Grants and Contracts:

  • General nurses’ training needs, and their acceptance of, and satisfaction with the use of video-based instructional materials for developing palliative care skills, 2016
  • Transitioning into an adult healthcare system for adolescents and young adults living with a chronic disease: parents’ perspectives, 2016
  • The efficacy and outcomes of CQUIN screening and impact on dementia diagnosis in patients aged 75 and older admitted to hospital for emergency unplanned care, 2016
  • Home from home: A case study of the first year settlement experiences of EU migrant nurses working in one NHS Trust, 2015
  • A project to develop and pilot a model of supported self-management in colorectal cancer, 2014-2015
  • Recognising the gift of organ and tissue donation: The views and preferences of donor families, 2013-2014
  • Bereaved relatives’ experiences of organ and tissue donation and perceived influences on decision-making, 2011-2013
  • Bereaved failies' experiences of organ and tissue donation, and perceived influlences on their decision making, 2011
  • Investigation into the barriers to multi tissue and corneal donation, 2010-2013
  • Investigation into the barriers to multi tissue and corneal donation, 2010
  • Evaluation of the experiences of family members whose deceased relative donated tissues at the NHSBT dedicated donation facility in Speke, Liverpool, 2009-2010
  • Increasing the acceptability and rates of organ donation among ethnic groups, 2009
  • Life on the list: An exploratory study of the life world of individuals waiting for a kidney transplant, 2007-2009
  • Exploring the end of life decision-making and hospital experiences of families who did not donate organs or tissues for transplant operations, 2004-2006
  • From understanding to implementation: Meeting the needs of families and individuals affected by post-mortem organ retention, 2003-2004
  • Families who did not choose to donate organs: Recruiting potential (research) participant, 2003-2003
  • Specialist palliative care support for family caregivers of non-cancer patients: An exploratory study in Hampshire, Dorset and Wiltshire, 2002-2004
  • Colbourne, 3-year, full-time Ph.D. Research Training Fellowship
  • Testicular and prostate cancer: Explaining the treatment and post treatment experience of couples, 2001-2004
  • Organ and tissue donation: Exploring the needs of families, 2000-2003
  • Improving access to palliative care services for ethnic minority groups, 2000-2001
  • ‘A story to tell’: Post bereavement correspondence between organ donor families, recipients, their OPOs and the National Donor Family Council: An American investigation, 1998-2000
  • 3-year, full-time Ph.D. Nursing Research Studentship, The experiences of donor relatives, and nurses’ attitudes, knowledge and behaviour regarding cadaveric donotransplantation, 1993-1996